Three women with pink masks looking boldly ahead

A diagnosis of PAH associated with scleroderma can be shocking, frightening, and overwhelming. But you’re not alone—there is support available from people who know what you are going through.

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Pulmonary Hypertension Association
Pulmonary Hypertension

Their mission is to extend and improve
the lives of those affected by pulmonary
hypertension, including people with PAH
associated with systemic sclerosis

Scleroderma Foundation
Scleroderma Foundation

A nonprofit dedicated to
supporting people with
scleroderma through education
and research


Founded by pulmonary
hypertension activists to create
awareness and support research
on behalf of families, caregivers,
and medical professionals

Breathe In, Speak Out
Breathe In, Speak Out

An educational resource provided by Janssen for people living with PAH. It can help you better understand the disease and how it can impact your life, and it has tips for dealing with it in the short term and long term


Started as a cycling team, a charity that seeks to raise awareness of pulmonary hypertension, fund medical research, and provide patient services

What Is PAH?

Scleroderma can cause serious lung problems like PAH.


Ask Your Rheumatologist About PAH

Talk with your rheumatologist about getting screened for PAH every year.

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